January10
To me, it’s always felt like my mum was the glue that kept our family together. She was solid and stable and kept everything running smoothly. She kept the calendar up-to-date on our fridge, knew which kid had to go where on a given night, planned meals, grocery shopped, cleaned, and worked full-time. (This isn’t to say that my dad didn’t do anything; he was equally involved, and our house would have fallen apart without him, but to me, Mum ruled.) She was always well-dressed, attentive to everyone around her, gentle, caring, loving yet stern when needed, she was my everything in a lot of ways.
My sophomore year of high school, though, that rock-solid stability started to falter. She started forgetting things, missing details, losing thoughts. She started napping a lot and crying more than I was comfortable with. Reoccurring nightmares made it such that she would walk our halls at night, afraid to try to sleep.
I remember the day they told me so distinctly. It was a dark February day, a Friday. I had come home from school and she was already there, on the couch, wrapped in blankets. She had been missing work a good deal by then. I sat down with her and we talked for a bit. She explained things to me as much as she could before the talking and thinking had exhausted her too much. My dad was at the kitchen table, and as I searched his eyes for an answer, I quickly came to understand that he didn’t have one. He was lost, drifting, trying not to explode, pleading with me through his eyes to not make a scene.
“She has to go,” he said, matter-of-factly. “She has to go away, she has to get help. This is one of the better programs, this Vet Hospital treats PTSD, and we’ll be able to visit. It’s only a few hours away.”
“How long?”
“I don’t know, two to three months. It’ll just be you and me for a while.”
I don’t know how, but this is one of the few times I held my shit together for them. (About an hour later, though, when Tim picked me up to go to a movie, I lost it, absolutely lost it. I cried throughout the whole movie – the first time I ever cried at a movie – and something in me broke that day; I now cry at almost any movie, as though my body has decided that this will be my release.)
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About five years later, after continued treatment and therapy, options to treat her PTSD were still being explored. She was much better, but still not entirely functional. It was hard, really hard, on the family. I can’t imagine how hard it was on her.
My dad has this thing about always being treated by the best. No matter what it took, if someone had a health issue, he felt the best doctors in the country should be sought out. So, my mum was being treated at Johns Hopkins for geriatric medicine. She wasn’t that old, but her symptoms were pointing to Alzheimer’s, and Hopkins was one of the best. She had multiple CAT scans, and my dad sent the films to be read not only by her doctors there, but also by brain specialists across the continent. It was acknowledged that her brain was altered, that her grey matter did in fact look similar to a brain of someone with advanced early-onset Alzheimer’s. But, thankfully, it was just her PTSD. This ‘disorder’ was so severe it had physically changed the make-up of her brain. It was scary, but also a relief.
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An article in the New York Times this week reports that the Pentagon has decided that PTSD does not qualify someone for the Purple Heart. Because “it is not a physical wound”. This makes me sick. It makes me want to jump up and down and scream. My mother’s brain has been physically altered. She was in war over 40 years ago and is still suffering the consequences, but wouldn’t be eligible because her scars are on the inside. Now, I understand some of the Pentagon’s reasoning – I’m sure a lot of people do try to fake PTSD to avoid further service, and I understand it is hard to diagnose. But maybe, instead of disregarding it yet again, they should look into further studying this disease, so that there are better standards by which to diagnose and treat PTSD.
How many people need to suffer this for the military to start to take it a little more seriously?! Are the reports of vets who turn violent, vets who are unable to be reintroduced into society, who shut down and can no longer deal not enough? Instead of throwing our resources at wars with no end, maybe we should be thinking a little more about what happens when thousands of men and women come home with long-term PTSD. What happens to the spouses and children of those vets who then live with this suffering, who start experiencing their own suffering, who breakdown along-side their loved one? Screw you, Pentagon.